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our mission.

Through the life-changing power of collaboration, our goal as a nonprofit patient advocacy organization is to educate and connect our community in order to find a cure for Dent disease, a rare genetic kidney disorder.

the faces of Dent.

DDFgoestoASN
DerekG
DouweH_edited
JacksonGASN
RubenandOlivier
DanielG
Jen&Dad
Utahboys
JacksonGatASN
Jen&Jill
DDFgoestoASN
Jen&JillASN
DentedKidneyFestival
MeyerWFIRM
Utahboys
Meyer/Goodrich hang out
Forest P. (patient)
Austin Forrest (patient) and family
GoodrichWFIRM
Barb Seide (Mayo Clinic RKSC)
Jen&Dr.NelsonASN
Jay Gustafson (patient)
Ryan M. (Patient)
Jen Meyer and sons
medicaladvisoryboarddinner
Dr. Lieske (Mayo Clinic), Dr. Beara Lasic (NYU) and Carly (RKSC-Mayo)
William (patient) and mom
2019 Jackson G. (patient) and Dr. Sas (Mayo clinic)
Dr. Lieske (Mayo Clinic) and Dr. Beara Lasic (NYU)
Dent Patient Meeting 2019
Philly Warriors for Dent

the DENTed blog.

Be counted.
Make an impact. 
Join RARE-X!

Doctors can't cure Dent disease if they can't find it.

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Your voice matters!

Microscope

our partners.

DDF_Logo2023_Final_WhiteOrange (1).png
  • Facebook

Follow our FB page

  • Facebook
  • Instagram

Join our FB group

Follow us on Instagram


Benefits include: 

  • ​updates on Dent Research

  • access to our Newsletter

  • DentTalks

  • and much more...

DISCLAIMER: Although we strive to present current information on Dent disease,
this website is not intended as medical advice but rather for informational purposes only.
Information provided should not be used for diagnosing or treating a health problem or disease. 
Always seek the advice of your doctor or other qualified health provider regarding a medical condition.

 
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