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**MEETING CONFIRMED! We hope to see you in AZ!!**
Please RSVP here to provide us with an accurate guest count.
Click below for more information.
New!! Dent Disease Research Database
This centralized, fully searchable database features almost 300 curated summaries synthesized directly from peer-reviewed PubMed literature. Designed for clinicians, researchers, patients, and families alike, our portal bridges the gap between complex science and accessible insights.
A specialized, open-access database that catalogs over 520 genetic variants causing
Dent Disease Type 1. It bridges the gap between global clinical research and patient care by providing a central repository for medical experts studying this rare kidney disorder.
our mission.
Through the life-changing power of collaboration, our goal as a nonprofit patient advocacy organization is to educate and connect our community in order to find a cure for Dent disease, a rare genetic kidney disorder.
making a Dent.
Advocacy efforts of the Dent Disease Foundation
(Click on event for more information. Click on [month] to switch to [schedule] view.)
the faces of Dent.
the DENTed blog.
Doctors can't cure Dent disease if they can't find it.
First, make sure your doctor has enrolled you in a
REDCap registry.
In addition, join RARE-X to input your data yourself.
Data = cures!!
our partners.
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